Still Ill
I’ve been ill now since August 2009. That’s 10 months or so, at time of writing. I’ve had pills and potions, diets, X-Rays, examinations by multiple consultants, a sigmoidoscopy and so far, nothing. No idea what it is.
The doctors are sticking to a diagnosis of IBS, which essentially means they don’t know either, IBS being a sort of catch-all term for any problem in that general area. The problems initially started as persistent diarrhoea, eventually though that subsided to be replaced with abdominal pain, which slowly grew worse and worse. My sides hurt, by lower abdomen hurts, just under my ribs hurt and my kidneys hurt. I’ve been taking codeine every 4 hours for almost 3 months or so now for the pain (it still hurts, but at least it hurts less) and I haven’t been able to sleep properly (even temazepam is having no effect whatsoever on my sleep patterns).
I’ve been away from work for months, working from home because travel is too painful, walking at any speed for any amount of time more than a few minutes become agony. I’ve not left the house in months except to go to a doctor or hospital appointment. Lifting things like a full 2l bottle or a kettle hurt. Hell, sometimes (depending on when I last took a painkiller) just pushing open the doors at home hurts.
As you might expect, this has caused all sorts of problems. Things aren’t ideal with work (and they have been incredibly helpful and understanding and I’m ashamed to say I haven’t kept them in the loop as much as I should have done, considering how good they’ve been about the whole situation) and I’m getting depressed by it all – being in pain all the time, being tired all the time and never going outside and not even being able to open a stubborn bottle for yourself tend to get you down after a while, especially when every single examination, doctor and consultant say there is nothing wrong as far as they can tell and slap me with a meaningless IBS label which does not help you at all.
I’m just tired, both figuratively and literally. I just want it to end.
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look i know ive said about it may be fibromyalia before, and ibs comes with that disorder alot.
gabapentan or pregabalin are good for pain despite wht they are actually used for, i used to be on them and it helped me abit.
maybe ask about them?
also there are many anti depressents that help with sleep issues and pain, ive also had them in the past, amytripiline is one of the most well known.
i dont mean to intrude in your life or be noisy i just thought id give you aome of my ideas, ive left messeges on your facebook page and lauras saying hi or how are you but you both havnt replied.
if you wish not to be my friend, or whatever we are, maybe just aquaintaiances, id wish you would tell me and not just egnore me, if that is the case then thats fine i understand just let me know.
or if not just tell me to mind my own bussiness with your health.
anyway hope soon youll have an answer, it took aaages for me and i felt like just wanting it to end and i questioned my sanety, but there will be an answer oneday.
-jade
The amitriptyline seems to be doing the trick for the most part so I think I’m more or less fine meds-wise. I’ve got a doctors appointment some time next week hopefully, so I’ll have a word with the doctors then, based on the follow up.
As for ignoring you – sorry, I tend to rarely read facebook – all my posts there come from various third party tools and so I’m very rarely on the site at all to read comments, etc. You’re probably best off emailing me if you want a response, since I tend to check my emails all the time on my phone.
ah ok will do.
i know we dont hang and w arnt really friends anymore since everyone went there seperate ways, but now you and laura are in touch with greg and dan again, i wonder sometimes if it was my fault, i know sometimes ppl thought me and james were bad for the group.
but i would like to stay in touch if thats ok, not just because you may have what i have and i want to help with that all i can, but because i would just like to keep in touch.
ive sometimes wondered if i could maybe join your roleplaying group again, but i bet i woudnt fit in and you are far away and i may just end up doing what i always do and not being reliable.
i read your blog all the time, when there is an update anyway, i try read lauras aswell but she hasnt updated in aages, i dont know if any of you read mine still i know monkey used to but like i say everyone is moving on in life.
anyway ranting now.
hope you get some answers to whats up with you